Why me? Actually no … it’s 1 in 5 of us, mostly women, who suffer in one degree or another. In my experience, once you have been diagnosed with one autoimmune disease, it is just a matter of time before you start accumulating a list, given that there are around 80 ways your immune system can decide to beat itself up.
I have not been sleeping well, but have to accept that it is a small price to pay for feeling so much better since I have been taking steroids again. I now have all night to plan what I am going to cram into my action-packed next day, whilst staring at the ceiling.
I have a couple of other steroidal side effects apart from the nocturnal musings. There is a long and alarming list.
Here is just a flavour, but you can cope so much better with not only your autoimmune problems but the steroidal side effects when you have your mojo back; even if it is steroid induced. That euphoric feeling when you know that you can take the dog for a 3 mile hike, rather than 3 minute amble.
At the beginning of 2017, I was dragging myself around like a 100-year-old tortoise. My daily regime had become pathetic. I would lie in bed until almost midday when, guilt ridden, I would rouse myself. I would eventually give in to my dog’s pleading I really, really want to go for a walk now look and amble up the road and back. The rest of the day would be spent doing chores in between lying down on the bed or sofa and I didn’t want to talk to a soul. It was not a happy place to be.
I was strongly resisting taking steroids again. I had taken myself off them previously because I really do not enjoy being a Michelin Man doppelgänger but, I had reached the stage where I had no choice.
I have so much to be thankful for now the steroid euphoria has kicked in. I might lie awake at nights but my life has significantly changed for the better.
7.00a.m. I may have only had about 3 hours sleep but I wake, then write … 3000 words is the daily challenge. Do all housework including the washing; take the dog for a 3 mile hike round the reservoir or on the beach. Come back and blog; then ring or message everybody on my contacts list, networking and socialising. Then prepare for a sleepless night.
So what if I end up looking like the Michelin Man? I have my life back.